Chronic Illness, Friendship, Health, Propionic Acidemia, True Life, Uncategorized

 Guinea Pig For A Week

This was a difficult and amazing week.

Crazy and I went to NIH (National Institute of Health) in Bethesda, Maryland.  I am the oldest one with Propionic Acidemia they know of, at age 52, and I volunteered for research.  From Tuesday through Friday, they kept us going back and forth to medical appointments and some of the tests were a bit freaky.  I did learn that they have discovered two strains of PA and both parents carried a different strain.  We stayed at Safra Family Lodge which was really nice after changing the first room.  The first floor was overrun with ants.  We saw 3 White Tipped Deer, a bunny, and a couple squirrels while there including a black one.

I got to meet people with PA and a Sister Disease; which was cool.   Then, we met up with an old friend on Saturday whom I haven’t seen in over 7 years and got to meet my Godson.  I held him in my arms when he was a baby but can’t do that, anymore.

We toured Washington DC and walked around the White House, Federal Building, etc.  Couldn’t get close to the Monument because of Protesters.

They may want me back again for more research and I told them, Great!  If they want to pay, no problem.

Crazy, Me and Rose (it’s a good nickname for her).

Remember with friends:

Make New Friends

But Keep The Old

One Is Silver

And The Other Is Gold

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s