Trip Ahead

My BFF amd I are going on a trip.  However, this is not necessarily a pleasure trip.  We are going to a Research Hospital so they can research Propionic Acidemia, the disease I was born with.  From what I know I cannot metabolize the amino acid “Glycine”. It can lead to suppressed immune system and other issues.  I am the 1st or 2nd eldest living with this so perhaps what they find will help others that survive.  We are taking an extra day for pleasure.. to see the area and to connect with a friend I lost contact with for over 7 years.


Chronic Illness Days

People with chronic illness physical or mental, know to be thankful for good days.  Well, I suppose we should be thankful for bad ones too.  

Today is one of those for me.  I am headachy with chills and minor vomiting.  I am also depressed over how life has gone.  Today would have been my Anniversary to my 1st husband.  The one I just spent time with on Monday.  I had not believed in Divorce before him and the pain was immense. I wonder if subconsciously that contributes to my being sick today.

I am still thankful for today.  There are a lot of people that don’t have a warm bed to lay in when sick or proper food to eat.  I will get through this with faith and rest today.

Sorry To Make You Wait

Okay, It’s been a bit. But, in my defense, I have been sick.  I am proud that I fought it out without antibiotics this time.  

I did have a situation though.  How many friends from your town where you live are on Facebook?  Would they be there for you during an emergency?  I, inadvertently put that to a test.  I had a horrible Migraine and needed my injection picked up ASAP.  Crazy had my car and she had recently taken meds that make her sleep.  I called a few people and posted it on Facebook.  Half an hour later, Crazy came through even though she wasn’t supposed to be driving, then.

I tactfully expressed my feelings on Facebook and got lectured by someone in another state and accused of whining.  The people that responded don’t even live here in Nevada or near me!

Aside from that, I have started Talkspace and met my Therapist via video last night.  It should prove to be a very interesting experience.

Migraine Medication

Today I want to talk about you at Imatrex;  the medication I take for my migraines.

 This medication really works. Sometimes it takes a little bit, but it does work. Oh my gosh,I just took my last one (which means of course now I’m going to have to pray that I can get a refill) but, this is the first one I think I have gotten this month.

 I give myself an injection of Imitrex in my thigh or upper leg. I have my friend put it together ahead of time so I don’t have to call her to come over. I can start doing it soon but my hand is still really, really sore.

 Anyway, when I give myself an injection of Imitrex, I can feel the hot liquid hitting every pain point. I mean every one; if you have a sunburn but you forgot about, this medication is going to hit it and it is going to burn. So, you can feel the medication working and after it goes all the way  through your bloodstream and hits all your pain points, of course including your brain, then you need to sleep it off for about 3 hours. When you wake up  either the headache is gone or at least it’s bearable to where you can take some Tylenol. 

I just ordered something else for migraines called Migraine Stop. Apparently, this has a mixture of Magnesium, Zinc, etc.  It is all natural, which is supposed to stop the migraines or at least cut down the duration. It has really good reviews, so I’m going to try it.

 Just wanted to to check in and share my migraine medication.

My Health Story- Part 1

A lot of times,  I  will tag this blog with Chronic Illness,  so I have decided to explain why:

I was born in 64 weighing 5 lbs 4 oz.  I was lethargic and vomiting a lot of the time.   As I grew older,  I did not eat well because every time I tried,  I would vomit.

I had a Sister born the prior year with the same symptoms but she died a month or so after birth,  so it was up to my doctors to discover what was wrong.
   My mother was told that I could be a Vegetable if I survived.
   The first 2 years of my life were spent in the hospital,  plus,  a few trips home.   My diagnosis was Propionic Academia, where I cannot metabolize  an amino acid.   Plus,  was put on a low – protein diet.